Our responses to the Quality Standards NICE Lyme Disease Guidelines

Jul 11, 2019 | Uncategorised

Our responses to the Quality Standards NICE Lyme Disease Guidelines can be viewed below.  As stakeholders, we take the stance of no confidence in the National Institute for Health and Care Excellence (NICE) and its inherent bias and ownership of Lyme Disease treatment and advice. Their fundamental lack of understanding and ability to successfully deal with the Lyme Disease situation is of utmost concern. We feel patients and their physicians will be placed at dangerous and unnecessary long term risks by these poor efforts of Guidelines and Quality Standards. For these reasons we are unwilling to endorse the Lyme Quality Standards.  These draft quality standards fail all patients with long standing Lyme disease and accompanying co-infections.  It is well known that there are no suitably qualified UK tick-borne illness Infectious Disease consultants in place to advise or treat patients with Lyme Disease. It is disingenuous to pretend or claim that there is UK...

LYME DISEASE TOOLKIT – Royal College of General Practitioners

May 21, 2019 | Uncategorised

  Lyme disease is a bacterial infection caused by the spirochaete Borrelia burgdorferi. It occurs worldwide, is increasing in incidence and is the most common vector-borne disease in the northern hemisphere. Whilst early recognition and treatment lead to resolution of the illness for many patients, late or missed diagnosis may result in persistent, debilitating symptoms. Although Lyme disease symptoms may often be non-specific and difficult to recognise, heightened awareness amongst primary care clinicians will increase the likelihood of patients receiving early and effective treatment. Clinicians should be aware of the genuine scientific uncertainties and on-going research in relation to both diagnosis and treatment of this disease.  This toolkit is a user-friendly guide to Lyme disease for general practitioners and other health care professionals. Patients and the general public may also find it helpful.  Key facts Introduction – Ticks and Lyme disease Diagnosing Lyme disease Testing for Lyme disease and other tick-borne infections Treating Lyme disease Persistent symptoms and misdiagnosis Lyme disease uncertainties and research Resources for education, training and quality improvement Support for patients, carers and the general public Information for NHS managers and commissioners The Lyme disease toolkit has been developed in partnership with the Clinical Innovation And Research Centre. Please send any comments or suggestions to circ@rcgp.org.uk. https://www.rcgp.org.uk/clinical-and-research/resources/toolkits/lyme-disease-toolkit...

Neil Spector MD, Oncologist, his views and comments on Tick-borne illnesses from his personal experience-

Jan 23, 2019 | Uncategorised

“To me, Lyme is the infectious disease equivalent of cancer. We don’t talk about cancer as just one disease anymore, and we should stop talking about Lyme this way. There are so many strains and co-infections. When you are bitten by a tick, you can get five or ten different infections at the same time. I also find it ludicrous to call all tick-borne disease, Lyme Disease. In breast cancer, we don’t just say, ‘You have breast cancer’,”because that simply doesn’t mean anything anymore. The language is important because it has a bearing on treatment. With cancer, we know that administering one algorithmic form of treatment doesn’t work. You have to understand the wiring that drives those tumors, the nuances, the mutations–and target them specifically. I think we need to start thinking this way about tick-borne diseases”.   -Neil L. Spector, MD. USA, Oncologist, and heart transplant recipient due to a tick...