Lyme disease NICE guideline. April 2018

A step in the right direction, but more work needs to be done to recognize the true extent that patients with lingering symptoms and other associated chronic tick-borne infections are treated and monitored. A specialist clinic for this purpose is what we at Vis-a-Vis Symposiums are working towards.  Education is the key, and we will not rest until all patients are treated with equal importance, whether they are newly infected or have been ill for many years. Lyme disease is only part of the problem.There is, and will be, no excuse in allowing the current situation to continue at a snail’s pace. ...

ALL-PARTY PARLIAMENTARY GROUP – LYME DISEASE

Tuesday 23rd January, 2018, was an auspicious day for UK Lyme patients, due entirely to the setting up of the Lyme APPG. We would like to thank the APPG Panel for their time, genuine interest, positive intentions and plans for moving the current stale situation forward. The position for Lyme patients has been ignored for far too long, and we hope there will be plenty of opportunities for useful participation if or when needed.         Representatives from charities and patient groups were asked to attend and deliver short presentations.  One of our trustees, Michael Cook, accompanied by Angela Howard, gave an excellent, brief, historical account and impressed upon the Panel where the focus should lie when it comes to improving – and dare we say – ending the misery of thousands of UK Lyme patients. From our point of view, these are some of the suggestions we made in need of important attention:   How can the APPG help? By considering the evidence ignored by the NHS and PHE in the development of current NHS/PHE diagnosis and treatment protocols and support the following. 1) Tests with superior sensitivity already exist and should be introduced, also reports from internationally accredited laboratories that use these tests should be accepted as evidence by the NHS. The two tier test requirement must be removed. 2) Ensure that all Lyme testing laboratories are accredited by UKAS to the International Standards Organisation ISO 15189. This should help avoid the problems confirmed by the Parliamentary Health Services Ombudsman investigation of the Lyme Reference Laboratory at Southampton which was closed in 2012. 3) Examine the position of any NICE guidelines which do not recognize the potential complexity of...

LORD ASTOR RAISES CONCERNS OVER LYME DISEASE DURING QUEEN’S SPEECH DEBATE

Queen’s Speech 29 June 2017 Volume 783 Lord Astor of Hever (Con) My Lords, I want to speak briefly on the specific health issue of Lyme disease, which is a rapidly increasing health risk in the United Kingdom. If Lyme disease is not treated early, it can cause significant illness and devastate affected patients’ lives. This is what life has been like for my daughter, and I declare this personal interest. The full speech is on Hansard :-...

HEART PROBLEMS AND TICK BORNE DISEASE

Gone in a Heartbeat: A Physician’s Search for True Healing ‘Dr. Neil Spector, one of the nation’s top oncologists, led a charmed life. He was educated at prestigious universities, trained at top medical centers, and had married the woman of his dreams. It seemed too perfect. And it was. In 1994, it all came crashing down.’ https://www.amazon.com/Gone-Heartbeat-Physicians-Search-Healing/dp/1936946424 Dr Spector had a heart transplant as a result of the effects of Lyme Disease on his heart.  It is important to recognise the serious risks to the heart from Tick Borne Diseases   Medical   Just a selection of published papers on Lyme Carditis but other Tick borne diseases can also cause Cardiac problems.   Lyme Carditis   An earlier News Item about Dr Spector     Cancer Researcher Who Nearly Died of Lyme Discusses the Similarities Between the Two...

Awareness publicity at Leicester Racecourse.

Leicester Racecourse is supporting us for the second year running!   Grateful thanks goes to the Board for donating a race in our name, and for the accompanying awareness publicity. Naval Warfare owned by Qatar Racing wins our race at Leicester, many congratulations to the team! Invictus, (Ger) owned by Mike and Eileen Newbould wins our second race at Leicester, many congratulations to the...

TICK AWARENESS MONTH

Great awareness from Chris Packham –   No doubt we all agree that keeping our animals safe, happy, and healthy is as important to us  as our own health and welfare.  Extra vigilance is needed here in the UK and when travelling abroad, and using suitable tick, flea, and worming products is absolutely crucial and needs prioritization.   Regarding the various preventatives and treatment options available, it is vitally important to seek expert veterinarian advice for appropriate protocol use on your particular type of animal and travel destination – healthy animals are happy animals, and it’s our responsibility to keep them that way.     We have previously highlighted the concerns to pet travel/ passports  http://www.visavissymposiums.org/veterinary/pets/pet-travel/ Thanks goes to The Big Tick Project for all their recent awareness of ticks and tick borne diseases, relevant all the year around not just in the month of May. ‘The Big Tick Project is the largest ever veterinary study of ticks and tick-borne disease in the UK. Explore the site to learn more about the study, the growing problem of tick-borne disease in the UK and what you can do to protect your pets from ticks’  http://www.bigtickproject.co.uk/   The Big Tick Project is calling for change to the pet travel scheme:-     ‘There is growing concern over the threat from ticks and tick-borne disease from countries outside of the UK. France, Spain and other popular European holiday destinations are hosts to ticks such as the brown dog tick and to tick borne diseases such as Mediterrean Spotted Fever which are not currently found in the UK. As a result there is potential danger to dogs travelling outside the UK from ticks and tick-borne disease as well as the risk posed by non-native ticks and new diseases...

Bartonellosis, One Health and all creatures great and small

Dr Breitschwerdt’s recently published paper:- Bartonellosis, One Health and all creatures great and small https://www.ncbi.nlm.nih.gov/pubmed/28133871 Dr Breitscherdt reviews Bartonellosis, zoonotic infections which are found Worldwide, caused by an expanding number of recently discovered Bartonella species.  RESULTS: Of comparative medical importance, Bartonella spp. are transmitted by several arthropod vectors, including fleas, keds, lice, sand flies, ticks and, potentially, mites and spiders. Prior to 1990, there was only one named Bartonella species (B. bacilliformis), whereas there are now over 36, of which 17 have been associated with an expanding spectrum of animal and human diseases. Recent advances in diagnostic techniques have facilitated documentation of chronic bloodstream and dermatological infections with Bartonella spp. in healthy and sick animals, in human blood donors, and in immunocompetent and immunocompromised human patients. The field of Bartonella research remains in its infancy and is rich in questions, for which patient relevant answers are badly needed. Directed Bartonella research could substantially reduce a spectrum of chronic and debilitating animal and human diseases, and thereby reduce suffering throughout the world.  CONCLUSION: A One Health approach to this emerging infectious disease is clearly needed to define disease manifestations, to establish the comparative infectious disease pathogenesis of this stealth pathogen, to validate effective treatment regimens and to prevent zoonotic disease transmission.   Earlier posts on this emerging infectious disease can be found:-   Understanding Bartonella   Bartonellosis: One health perspectives on an emerging infectious disease   Through the search feature on the web version of this blog- Breitschwerdt Vector Infection Symposiums Also of interest –  Dr. Robert Mozayeni is a rheumatologist with graduate and post-graduate physician-scientist training from Albany Medical College, Yale University,...

Ticks in UK – ticks found to carry Borrelia s.l and Borrelia Miyamotoi in peri-urban and urban areas.

Ticks and Borrelia in urban and peri-urban green space habitats in a city in southern England Abstract Ticks are becoming increasingly recognised as important vectors of pathogens in urban and peri-urban areas, including green space used for recreational activities. In the UK, the risk posed by ticks in such areas is largely unknown. In order to begin to assess the risk of ticks in urban/peri-urban areas in southern England, questing ticks were collected from five different habitat types (grassland, hedge, park, woodland and woodland edge) in a city during the spring, summer and autumn of 2013/2014 and screened for Borrelia burgdorferi sensu lato. In addition, seasonal differences in B. burgdorferi s.l. prevalence were also investigated at a single site during 2015. Ixodes ricinus presence and activity were significantly higher in woodland edge habitat and during spring surveys. DNA of Borrelia burgdorferi s.l. was detected in 18.1% of nymphs collected across the 25 sites during 2013 and 2014 and two nymphs also tested positive for the newly emerging tick-borne pathogen B. miyamotoi. Borrelia burgdorferi s.l. prevalence at a single site surveyed in 2015 were found to be significantly higher during spring and summer than in autumn, with B. garinii and B. valaisiana most commonly detected. These data indicate that a range of habitats within an urban area in southern England support ticks and that urban Borrelia transmission cycles may exist in some of the urban green spaces included in this study. Sites surveyed were frequently used by humans for recreational activities, providing opportunity for exposure to Borrelia infected ticks in an urban/peri-urban space that might not be typically associated with...