Lyme disease NICE guideline. April 2018

A step in the right direction, but more work needs to be done to recognize the true extent that patients with lingering symptoms and other associated chronic tick-borne infections are treated and monitored. A specialist clinic for this purpose is what we at Vis-a-Vis Symposiums are working towards.  Education is the key, and we will not rest until all patients are treated with equal importance, whether they are newly infected or have been ill for many years. Lyme disease is only part of the problem.There is, and will be, no excuse in allowing the current situation to continue at a snail’s pace. ...

ALL-PARTY PARLIAMENTARY GROUP – LYME DISEASE

Tuesday 23rd January, 2018, was an auspicious day for UK Lyme patients, due entirely to the setting up of the Lyme APPG. We would like to thank the APPG Panel for their time, genuine interest, positive intentions and plans for moving the current stale situation forward. The position for Lyme patients has been ignored for far too long, and we hope there will be plenty of opportunities for useful participation if or when needed.         Representatives from charities and patient groups were asked to attend and deliver short presentations.  One of our trustees, Michael Cook, accompanied by Angela Howard, gave an excellent, brief, historical account and impressed upon the Panel where the focus should lie when it comes to improving – and dare we say – ending the misery of thousands of UK Lyme patients. From our point of view, these are some of the suggestions we made in need of important attention:   How can the APPG help? By considering the evidence ignored by the NHS and PHE in the development of current NHS/PHE diagnosis and treatment protocols and support the following. 1) Tests with superior sensitivity already exist and should be introduced, also reports from internationally accredited laboratories that use these tests should be accepted as evidence by the NHS. The two tier test requirement must be removed. 2) Ensure that all Lyme testing laboratories are accredited by UKAS to the International Standards Organisation ISO 15189. This should help avoid the problems confirmed by the Parliamentary Health Services Ombudsman investigation of the Lyme Reference Laboratory at Southampton which was closed in 2012. 3) Examine the position of any NICE guidelines which do not recognize the potential complexity of...

LORD ASTOR RAISES CONCERNS OVER LYME DISEASE DURING QUEEN’S SPEECH DEBATE

Queen’s Speech 29 June 2017 Volume 783 Lord Astor of Hever (Con) My Lords, I want to speak briefly on the specific health issue of Lyme disease, which is a rapidly increasing health risk in the United Kingdom. If Lyme disease is not treated early, it can cause significant illness and devastate affected patients’ lives. This is what life has been like for my daughter, and I declare this personal interest. The full speech is on Hansard :-...

HEART PROBLEMS AND TICK BORNE DISEASE

Gone in a Heartbeat: A Physician’s Search for True Healing ‘Dr. Neil Spector, one of the nation’s top oncologists, led a charmed life. He was educated at prestigious universities, trained at top medical centers, and had married the woman of his dreams. It seemed too perfect. And it was. In 1994, it all came crashing down.’ https://www.amazon.com/Gone-Heartbeat-Physicians-Search-Healing/dp/1936946424 Dr Spector had a heart transplant as a result of the effects of Lyme Disease on his heart.  It is important to recognise the serious risks to the heart from Tick Borne Diseases   Medical   Just a selection of published papers on Lyme Carditis but other Tick borne diseases can also cause Cardiac problems.   Lyme Carditis   An earlier News Item about Dr Spector     Cancer Researcher Who Nearly Died of Lyme Discusses the Similarities Between the Two...

Awareness publicity at Leicester Racecourse.

Leicester Racecourse is supporting us for the second year running!   Grateful thanks goes to the Board for donating a race in our name, and for the accompanying awareness publicity. Naval Warfare owned by Qatar Racing wins our race at Leicester, many congratulations to the team! Invictus, (Ger) owned by Mike and Eileen Newbould wins our second race at Leicester, many congratulations to the...