The Royal College of General Practitioners – Lyme Spotlight Project

This RCGP spotlight project focuses on raising the profile of Lyme disease in general practice and thereby increase awareness and improve patient outcomes. It was launched in May 2018 and will support primary care clinicians in developing clinical skills and expertise aimed at improving early recognition, diagnosis and treatment of the condition.  Included will be GP workshops and the development of an easily accessible on-line toolkit. The first Lyme Spotlight GP workshop will be held on Monday 12th November :   https://rcgpportal.force.com/s/lt-event?site=a0d0Y00000AeOP6QAN&id=a1U1n00000G7S3IEAV   Vis-à-Vis Symposiums are pleased to be represented in the steering group of this...

INTERNATIONAL CLASSIFICATION OF DISEASES (ICD) UPDATED FOR LYME DISEASE.

Although most Lyme Disease Guidelines including NICE failed to recognise congenital Lyme Disease or Dementia caused by Lyme Disease the World Health Organisation and United Nations do. The ICD codes were recently revised and the ICD11 Report was formally adopted in June 2018 by the United Nations and its implementation will begin in 2019. To view enter Lyme in the search on this link and a drop down will appear see photo https://icd.who.int/browse11/l-m/en#/  ...

Lyme disease NICE guideline. April 2018

A step in the right direction, but more work needs to be done to recognize the true extent that patients with lingering symptoms and other associated chronic tick-borne infections are treated and monitored. A specialist clinic for this purpose is what we at Vis-a-Vis Symposiums are working towards.  Education is the key, and we will not rest until all patients are treated with equal importance, whether they are newly infected or have been ill for many years. Lyme disease is only part of the problem.There is, and will be, no excuse in allowing the current situation to continue at a snail’s pace. ...

ALL-PARTY PARLIAMENTARY GROUP – LYME DISEASE

Tuesday 23rd January, 2018, was an auspicious day for UK Lyme patients, due entirely to the setting up of the Lyme APPG. We would like to thank the APPG Panel for their time, genuine interest, positive intentions and plans for moving the current stale situation forward. The position for Lyme patients has been ignored for far too long, and we hope there will be plenty of opportunities for useful participation if or when needed.         Representatives from charities and patient groups were asked to attend and deliver short presentations.  One of our trustees, Michael Cook, accompanied by Angela Howard, gave an excellent, brief, historical account and impressed upon the Panel where the focus should lie when it comes to improving – and dare we say – ending the misery of thousands of UK Lyme patients. From our point of view, these are some of the suggestions we made in need of important attention:   How can the APPG help? By considering the evidence ignored by the NHS and PHE in the development of current NHS/PHE diagnosis and treatment protocols and support the following. 1) Tests with superior sensitivity already exist and should be introduced, also reports from internationally accredited laboratories that use these tests should be accepted as evidence by the NHS. The two tier test requirement must be removed. 2) Ensure that all Lyme testing laboratories are accredited by UKAS to the International Standards Organisation ISO 15189. This should help avoid the problems confirmed by the Parliamentary Health Services Ombudsman investigation of the Lyme Reference Laboratory at Southampton which was closed in 2012. 3) Examine the position of any NICE guidelines which do not recognize the potential complexity of...